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  Public Policy & Activism > Legal Issues > Facing the Future > Introduction

PLANNING FOR THE FUTURE: An Introduction

 

Whether you have just been diagnosed or have been living with AIDS or HIV for a long time, planning now for your children’s future is both necessary and important. This handbook was written to help make this process as smooth and worry-free as possible.

As you plan for the future, you should also be prepared for the difficult feelings involved. Just being a parent with HIV or AIDS is hard enough. You may feel scared about the future, but at the same time, you have to calm your own family’s fears. You may feel sick or tired, but at the same time, you have to care for your children’s needs: feed them, clothe them, get them off to school. “Being HIV positive, being a mother — it’s not an easy job,” said one Queens mom.

Only you can make decisions about what is best for you and your children.Facing the Future explains the legal options that will help you carry out these choices. Before you decide about the arrangements for the care of your children, you should speak to friends, family, social workers, clergy — whomever you rely on to help you make important choices in your life. There also may be people in your life who do not know about your HIV status. You will have to think about whether you need to tell them in order for your plans to be carried out.

Thinking about who will care for your children may upset you. If you feel healthy, it may make you think about getting sick. “I felt that it meant that I was going to die soon — that it would put me closer,” said one woman who recently drew up a will. “But that was just my own fears — I know that now.” You may worry about whether your children will receive the kind of care you’d like, and whether they can stay together. As a parent, you will also have to help your children deal with their own fears of losing you, about upheaval in their lives, and fears about their future guardians.

This section will explain some of the questions you should ask yourself and the issues that will arise as you read this handbook. It will start you thinking about choosing a guardian, formalizing your wishes, and preparing for the transition to your child’s new caretaker.

You should also talk to a lawyer who can tell you about your legal options and put what you want on paper. There are many legal agencies listed in the back of this handbook that provide free legal assistance.

Choosing a Guardian

Thinking about who will raise your children if you are unable to can be a difficult decision. You want a loving home for them, and you will have to examine people you know to see if they would be good parents. You may know several people who would be good parents, and it may be difficult to choose among them.

If your children’s other parent is alive and involved in your children’s lives, that person would normally become the guardian. But if that person is abusive, has abandoned the children, or is unfit, you will want to pick another caretaker.

Think carefully about your choice. Does the person you are considering want to raise your children and do they get along with them? Do they have the energy and resources to raise your child? (There are ways to get financial help for your child - see below.) Do they have friends and family who can help them out? Does that person share your philosophy of child-raising? Will the person respect your wishes? How do your children get along with the person? What do your children think?

Talking with your own family may help you make your choice and gain your family’s support. “I discussed [it] with both my sisters and between the three of us we made the decision of who is going to have the guardianship,” said an HIV-positive parent. “We all feel it’s the right thing to do — we made the decision together.”

Sometimes your choice will upset members of your family who were not chosen, and you should be prepared to talk it out with them, so they don’t challenge your decision later.

If no one comes to mind who could care for your child, try discussing the issue with family and friends. They may have some ideas you never thought of. Your kids, if they are old enough, may have ideas and can help you decide who would be a good parent. If there is no one in your life who can raise your children, you can get help from one of the agencies.

Formalizing Your Wishes

It is important to put your wishes in writing. One of the best ways of putting your wishes in writing is by making a will. Many people think drawing up a will is about distributing your property upon death. “I thought only rich people made out wills, but I’ve learned a lot of things since I had this virus,” one mother with AIDS said. “It’s a natural thing to do.” In fact, a will is a document where you state your wishes for what you’d like to see happen upon your death, including naming who will care for your children.

“I’ve seen a few people get sick and they didn’t take care of this — it was left in other people’s hands,” said one woman who sought help from a lawyer. “Don’t wait until you’re sick,” cautioned another parent. “Do the papers now, while you’re well.” That way, you will be making these important decisions when you are feeling well so that you can clearly think through what is best for you and your children.

Writing up a will may not be enough for you to put in place your wishes concerning the future care of your children. You have many other choices, including going to court. Facing the Future explains these choices. As you read through the handbook, you may want to think about the following questions to help you decide which option makes the most sense for you and your children. Are you sick or healthy? Do you need to make immediate arrangements for your children, or are you planning for a future time when you will no longer be able to care for them? Are you comfortable giving up most of your legal rights as a parent now, or would you rather wait? Would you feel better knowing the court has made a decision now, or do you prefer to state your wishes now, and let the courts make the decisions later?

Will your chosen caretaker need the financial help that would be available to them as a foster parent? Is this help necessary considering the fact that the New York City Department of Social Services — not the family member or friend you may have chosen — would then be the legal custodian and be able to make decisions about your child’s care, or even remove your child from the home you’ve chosen?

Would it make you feel at ease to have your child adopted, a permanent decision that can almost never be altered by the courts? Are you ready to give up all legal rights to your child, including the right to make decisions about their schools, their religious training, even where they live? Do your children need legal status as U.S. citizens?

 

Preparing for the Transition

Once you have chosen a guardian for your children, you should think about talking to the guardian about how you would like the children to be raised. “My mom and I talk almost every day — whatever comes up,” said the Queens mother who chose her son’s godmother to be the guardian. “She’s been there 100% for me — if I’m not feeling well she comes and picks him up and takes him to her house. When I get depressed, she’s there — when I get stressed out, she’s there.”

It may be good for your child to spend more time with their future guardian. “After we had decided the guardianship, it became more important for me to have a closer interaction with my niece and nephew,” said one aunt preparing to raise her sister’s children. “It was a step to the transition that would occur in terms of the children coming to live with us.”

As you read the pages that follow, don’t be shy about asking questions of your lawyer, your counselor, or your friends. For many of you, this will be the first time you’ve filled out a legal document, spoken to a lawyer, or appeared in court. No question is unimportant. It’s important to get all of your questions answered so that you can make the best decision for yourself and your children. Talk to other parents who are going through the process so you can support and help each other. It takes a lot of courage to plan now for your children’s future. We encourage you to go at your own pace and to seek advice in making these difficult decisions. Remember, you are not alone.

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